So last night was the opposite from the first night. I fell asleep ok and then woke at 3am and it was roasting. So we have went from the heating not working to us being too hot.
I spoke to the nurse last night about getting my treatment sharp as the boys were coming to visit and if possible I didn’t want to be hooked up to a drip. I knew then that this was going to be a challenge as she said she was in herself and they would be short staffed.
So I’ve showered, paced the floor and played games waiting for the infusion to start. I got started about 12.30 so looks like I won’t be finished before the boys come up. The agreement was that the boys were coming up after McDonald’s so we managed to pass the time and get the treatment finished before they arrived. I don’t think the steroids were better tasting today. But definitely didn’t seem as strong. Although today I’ve felt a bit more heartburn, apparently this could be the steroids.
Over the past few days I’ve been trying to decide if past symptoms are re-emerging. I’ve sometimes had the weakness in my arms back, I’ve struggled with my eyesight a bit, had a slight difficulty walking. But it could just be ms at the level it already was at.
When the boys came and my friend from work I went a walk over into the new part of the hospital. That was probably the worst I’ve felt through this. It was extremely tiring. But at least it might help me sleep.
Tonight we have turned down the thermostat and I’m on window duty if it gets too hot.
Drinking fluids is important through this treatment to prevent headaches. I can’t say I’m trying to drink more but I am thirty. I thought it might be useful to record how much I’ve drank each day. Day 3 – 3.3lt