So my latest neurologist appointment hasn’t gone so well. Firstly for anyone that follows from the last post my neurologist does not support the use of antihistamines to manage MS. (Didn’t tell him I was doing my own trial).
However his reasons for not using antihistamines did not seem to be about if they would work or not and rather more about how expensive it would be to run the trial and that no one would fund a bigger trial (and the reasons why this was).
I’m starting to think that neurologists are a different breed of people (there must be a joke there somewhere). I told him that I had been feeling tired lately and that I have been getting a weird burning sensation in my leg which then goes ice cold. I also explained that I have been tired most of the day, most days recently.
Its now only a few days later that I am thinking more about this conversation, his reply to this information that I gave him was that I was having a relapse and I needed to get MRI scans to see what was happening. I asked what I should do with my symptoms and should I carry on as normal or try and get a bit more rest. I was basically told to ignore them. And then based on the scans we would decide what medication I was starting.
I had went from someone who was “healthy” to someone who was relapsing, he had completely devastated me and he had no idea. I got out of the hospital fast and phoned my partner and explained what had happened. I couldn’t stop crying and this was completely out of my control, there was nothing I could do.
I phoned my GP and through the tears told her I didn’t know why I was phoning as I didn’t know what she could actually do to help, but I wanted to tell her incase she could do something. (She must have thought I was an idiot, and I kept saying sorry to her for crying.) She signed me off work for a couple of weeks to get my head around what was happening. And that when I realised that the neurologist asked next to nothing. He was interested in my physical symptoms. But as far as the fact I haven’t had a full nights sleep in weeks, I am a single parent of two young children, it’s coming up to Christmas, I have a mental ex husband and a stressful job. Surely these thing should be considered and there comes a point where I need to slow down. I don’t think my body can cope with everything that I am trying to do. He didn’t even ask how sore and uncomfortable the pain was that I am experiencing or tell me what I can do to help with it.